I saw my grandson, Sean, a couple weekends ago. He lives with his Mom and Dad about 300 miles from here so I don't get to see him as much as I would like.
Sean is a special child, born with Rubinstein-Taybi Syndrome. Here is a website that Nicki added a page to about Sean about 8 yrs ago.
RTS - Our Pages - Sean Patrick Regan - Rubinstein-Taybi Syndrome
Here is a link that explains about RubinStein-Taybi Syndrome
Rubinstein-Taybi syndrome Information on Healthline
As you can see, it's a complex syndrome and Sean has most of the things you just read about. He is so incrediably musical which I guess he just couldn't help with the all music in his family! He also loves playing basketball and has been taking theraputic horseback riding lessons. I hope to see him taking part in this activity someday.
So here are some pics of him from this year. He turned 12 in June. Oh My! Where has the time gone!
Sean is a special child, born with Rubinstein-Taybi Syndrome. Here is a website that Nicki added a page to about Sean about 8 yrs ago.
RTS - Our Pages - Sean Patrick Regan - Rubinstein-Taybi Syndrome
Here is a link that explains about RubinStein-Taybi Syndrome
Rubinstein-Taybi syndrome Information on Healthline
As you can see, it's a complex syndrome and Sean has most of the things you just read about. He is so incrediably musical which I guess he just couldn't help with the all music in his family! He also loves playing basketball and has been taking theraputic horseback riding lessons. I hope to see him taking part in this activity someday.
So here are some pics of him from this year. He turned 12 in June. Oh My! Where has the time gone!
Sean relaxing with Dad.
2 comments:
12, Sean is 12? Boy have I lost track of the years.
I share your RTS experience. My 4 year old daughter was born with it. She and Sean look very similar. Cheers to you!
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